What a great weekend…

Well, first off of course I had a great day on Saturday with Miss Isabelle.  How could I not.  She’s the light of my life.  I love spending time with her.  She’s growing like a weed, and pulling herself up on everything.  Now she’s trying to get the whole walking around things down.  It’s fun watching her figure it out, but it makes me sad when she bonks her head, or smacks her mouth on the table, but I guess she has to learn some how.

Then on Sunday, wow what a day that was.  Brian and I headed out to Bessie’s House around 8:30 to be there by 9:00 am.  It was so great for me to be there for the first time.  Bessie’s is a place for homeless and prostitutes to come in and take a shower, wash clothes, get some food, etc.  Anyway, on Sundays they have their own Sunday service outside praising Jesus, they get fed, then Bessie’s House closes down for the day.  But I totally enjoyed the day serving and listening to the service and just being welcomed with open arms by everyone that knows Brian and finally got to meet me for the first time they showed me love the way Christ loved the church.  It was Amazing.  I’m going to go with Brian every Sunday to help serve.  I really enjoyed myself and felt at home there.  Just seeing a difference from there to where we worship is crazy.  Don’t get me wrong, there’s nothing wrong with where we worship, but the difference is in the people and how they see Jesus.  People on the streets depend on Him more than people who have safety in their lives of living in homes and always having food in their bellies.  They just seem to know Jesus more.

So be strong and courageous! Do not be afraid and do not panic before them. For the Lord your God will personally go ahead of you. He will neither fail you nor abandon you. Deuteronomy 31:6

So much on my mind…

Here recently I’ve been wondering about my weight with my MS.  I know that my weight is a big issue, I mean BIG!!!  Ge’ez, I’m BIG, B-I-G!!!  So anyway, I’m looking into Lap Band Surgery.  I’m going to go to a seminar on it in July to see what it’s all about.  There’s a possibility that my insurance could cover up to 100%.  I mean when you go through the list, I’m pre-diabetic, I have high blood pressure, my BMI is over 35, I’ve been over weight (or should I say obese) for at least 5 years, you have to be at least 18 (well I’m 40 so I think I qualify for that), your series of weight loss attempts have been short-term (yep, I qualify for that too).  I have to do something so I’m going to talk to my Dr. about it on Tuesday when I go in.  We’ve been talking about my weight anyway so it maybe something he might approve of.  Maybe he’d even write a letter of recommendation to the insurance company stating that it’s a necessity for my health with my MS and all.

Anyway, that’s the crap going on in my head these last couple days.  But my poor husband has had a stupid summer cold.  Now my daughter is getting it and if I get it again, I’m really going to be pissed at someone.  I can’t afford to be sick again.  I don’t take time off work.  The only time I do is to leave early for my Dr. appointments.  I accrue 2.3 hours each pay period and after next Tuesday I’ll only have 8.7 hours available.  I’m not wasting those.  So anyway, I have to keep myself healthy.  But an update on my MS meds.  I did get the authorization from my insurance company to go with the Copaxone, but I haven’t heard from my Neurologists office yet on when I’ll be starting it or what.  But I’m feeling fine since I haven’t been taking anything.  That Avonex was some Bad A$$ stuff!!!  YUCK!!!

Well, I better go and sit here at my desk and answer the phones.  Take care & God bless.

Got a call back yesterday…

Well, I got a call back from my Neurologists office yesterday about my Avonex.  I guess hearing me cry about it and hearing the pain in my voice got them to decide to change my treatment.  So anyway they’re getting authorization from my insurance company and then I’ll be starting Copaxone.  It’s an everyday shot, but it apparently doesn’t have the side effects that Avonex has.  Do I want to do a shot everyday?  No, but I will if it will make me feel better.  Believe it or not, I think my body knows it’s Friday cause it’s tensing up dreading what normally happens tonight.  Well, I’m not going to take my last shot, it’s going in the garbage.  BYE, BYE AVONEX!!!  Good riddance!!!

I went to my regular Dr the other day and my blood pressure was really high for me.  I have always ran normal.  Always in the 120/80 range.  Not Wednesday.  It was 168/102.  So needless to say they put me on a HCTZ which is also a diuretic.  Yea me, I’ll be peeing a lot!!!  LOL  Anyway, I let him know that I was going to stop my Avonex and he thought it was a smart idea.  I just gave him a look and said ‘really’?  He said yea.  He said he felt that I should know my body and if it made me feel bad and I hurt with it, then it wasn’t the right “treatment” for me.

So this weekend will be fun.  I have Isabelle tomorrow and she’s going to the dentist with me.  The girls there will be enjoying that.  They always loved it when the kids were little and they got to play with them at that time, now they get to play with the grand baby.  They still can’t believe that Amanda has a baby.  Jeez, I can’t believe Amanda has a baby.  LOL.  But anyway, it’s never too early to take them to the dentist and show them what it’s like.  Get them socially involved with them.  So, after the dentist, I’m meeting up with a girlfriend and her kids and going to take pictures of the kids for her.  I guess it’ll be one way for me to get my name out there and hopefully get some business for photography and make a little cash on the side.  🙂 

Well, better get back to work.  Take care and God bless y’all!!!

Together, we are his house, built on the foundation of the apostles and the prophets. And the cornerstone is Christ Jesus himself  ~Ephesians 2:20

Letter to my Neurologist…

I actually sent my Neurologist an email and let her know that I’m not going to take my Avonex any longer.  I have one more dose left for this Friday evening, but after that, no more.  I mean it.  I can’t handle it any longer.  I’ve been taking this stuff since February 2009 and this crap drives me insane, literally.  I have 4 spots on my body that I can give myself this injection.  Each in my upper thighs and in my upper arms.  It is an intramuscular injection.  The needle is 1 1/4″ long.  Yep, it’s a long sucker!!!  Anyway, usually by 2 am I’m shaking and shivering so badly from having the chills that my husband says it feels like I’m convulsing.  It makes my body hurt from my muscles tightening.  I let her know that I’d be more than happy to try something different and that doesn’t make me feel like complete crap.  When I get up on Saturdays, I have such a splitting headache that it’s debilitating.  I watch Isabelle in Saturdays and I want to be totally alert for her and want to be able to play with her 100%.  Is that too much to ask for?

Anyway, our weekend was great.  We had a bbq with the kids and I’ll share a few pictures with that.  We had Isabelle swinging in her swing in the back yard at my in laws house and she just loves that.  My son finally got his girlfriend Kara over, Amanda and Brandon enjoyed their time there too.  After a while, Brian and Kara went to her family’s house.  Then Amanda, Brandon & Isabelle left too.  But when they left, we wound up getting a phone call from them telling us they got pulled over by a cop in Claycomo, and told them it was for, get this, ‘Racial Profiling’!!! WHAT THE HECK IS THAT ALL ABOUT!?!?!?  Believe it or not, it was a black cop that pulled them over and told them that.  He said that they can pull over just as many white people over as black people.  Well needless to say, that pissed my husband off so we went to the police station and talked to the officer in charge.  He gave us some papers to file a complaint and said that if that is what he actually said to the kids, there would be a full investigation and action would be taken against the officer that pulled the kids over.  Each car is equip with audio and video, so if it did happen that way, that officer is screwed big time.  I couldn’t believe it.  My husband drove through Claycomo about 6 to 8 times praying that he would get pulled over by this cop for that. 

Anyway, I better get back to work.  Much love to all and God bless.

I was glad when they said to me, “Let us go to the house of the Lord.” ~ Psalm 122:1

 

Isabelle Swinging

Amanda & Brandon

Brian & Kara